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#1 |
Administrator
![]() ![]() ![]() ![]() ![]() Why climb a mountain? Because it's there!
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I know it's a long shot but has anyone reduced their ferritin levels? DH has high ferritin from blood transfusions. The recommended drug has a lot of side effects.
We are already doing some of the things in this article. Turmeric, milk thistle, foods high in sulphur, tea, raw milk. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3821171/ and I'm planning to add in organic soy protein powder. I have to be careful with herbs as some are immune stimulants and he has a history of life-threatening auto-immune disease.
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Lisa, 49. Married to the love of my life for 25 years! Moderator in Theological & Doctrinal Issues, Drawing Closer, Bible Study, & Educating Our Children Mom to 5 wonderful kids, ages 6, 12, 13, 15, 18. My Instagram Certified Corrective Exercise Specialist and Personal Trainer.. |
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#2 |
Rose Garden
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no, I do not. I would recommend emailing Matthew Wood though if you think it would be helpful. I know when I was in desperate need of herbal advice he was quite helpful.
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#3 |
Rose Garden
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He e-mailed me back too.
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ENFp Wife who is thankful to be in love....17 years Homeschooling Mom of three....14 DD dancer and 11 DS mountain biker and 4 DD calico critter and dolly mommy ![]() ![]() ![]() ![]() |
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The Following User Says Thank You to ECingMama For This Useful Post: | Soliloquy (06-22-2018) |
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#4 |
Administrator
![]() ![]() ![]() ![]() ![]() Why climb a mountain? Because it's there!
Join Date: Mar 2005
Location: Selkirk Mountains
Posts: 52,306
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I used to live a few hours from him.
![]() Thank you, I will see if he has any suggestions. And I added his books to my wishlist! ![]()
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Lisa, 49. Married to the love of my life for 25 years! Moderator in Theological & Doctrinal Issues, Drawing Closer, Bible Study, & Educating Our Children Mom to 5 wonderful kids, ages 6, 12, 13, 15, 18. My Instagram Certified Corrective Exercise Specialist and Personal Trainer.. |
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The Following User Says Thank You to Soliloquy For This Useful Post: | ECingMama (06-24-2018) |
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#5 |
Rose Garden
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The only thing I know is donating blood, which I am assuming is a no go in this case.
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Erin born of water and of the Spirit 4/96 married 5/02 Mama to: ![]() ![]() ![]() 2004 2007 2010 2012 July 2017 Dec 2019 |
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The Following User Says Thank You to Aerynne For This Useful Post: | rosesnsnails (09-28-2018) |
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#6 |
Administrator
![]() ![]() ![]() ![]() ![]() Why climb a mountain? Because it's there!
Join Date: Mar 2005
Location: Selkirk Mountains
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Yeah, he needs blood transfusions so the cause won't go away.
---------- Post added at 07:44 PM ---------- Previous post was at 07:42 PM ---------- Oddly enough, his dad has hemachromatosis and donates blood when he needs to. But different blood type than DH. (DH doesn't have the gene for hemachromatosis.)
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Lisa, 49. Married to the love of my life for 25 years! Moderator in Theological & Doctrinal Issues, Drawing Closer, Bible Study, & Educating Our Children Mom to 5 wonderful kids, ages 6, 12, 13, 15, 18. My Instagram Certified Corrective Exercise Specialist and Personal Trainer.. |
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#7 |
Administrator
![]() ![]() ![]() ![]() ![]() Why climb a mountain? Because it's there!
Join Date: Mar 2005
Location: Selkirk Mountains
Posts: 52,306
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I found something!!!!
IP6, a form of inositol, made from rice bran. Just ordered. It arrives Friday. I'm hoping this helps! The chelating drug he's been on since I started this thread doesn't work very well at all. ---------- Post added at 10:14 AM ---------- Previous post was at 10:13 AM ---------- He's been able to go off it for a week or so at a time, then he needs to go right back on it. And it's very SLOW at getting that ferritin level down.
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Lisa, 49. Married to the love of my life for 25 years! Moderator in Theological & Doctrinal Issues, Drawing Closer, Bible Study, & Educating Our Children Mom to 5 wonderful kids, ages 6, 12, 13, 15, 18. My Instagram Certified Corrective Exercise Specialist and Personal Trainer.. |
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The Following User Says Thank You to Soliloquy For This Useful Post: | tempus vernum (10-12-2020) |
The Following 2 Users Say they are praying for Soliloquy: | ECingMama (10-12-2020), tempus vernum (10-12-2020) |
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#8 |
Rose Garden
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I’m praying, my friend. I hope this works.
Did you ever email Matthew Wood?
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ENFp Wife who is thankful to be in love....17 years Homeschooling Mom of three....14 DD dancer and 11 DS mountain biker and 4 DD calico critter and dolly mommy ![]() ![]() ![]() ![]() |
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#9 |
Administrator
![]() ![]() ![]() ![]() ![]() Why climb a mountain? Because it's there!
Join Date: Mar 2005
Location: Selkirk Mountains
Posts: 52,306
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No, I can't remember why. I think I just forgot.
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Lisa, 49. Married to the love of my life for 25 years! Moderator in Theological & Doctrinal Issues, Drawing Closer, Bible Study, & Educating Our Children Mom to 5 wonderful kids, ages 6, 12, 13, 15, 18. My Instagram Certified Corrective Exercise Specialist and Personal Trainer.. |
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#10 |
Administrator
![]() ![]() ![]() ![]() ![]() Why climb a mountain? Because it's there!
Join Date: Mar 2005
Location: Selkirk Mountains
Posts: 52,306
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So I actually found something that reduces ferritin. IP6. It's a form of inositol. Made from rice bran. Chelates iron out of the body. Recommended for people with high iron, post-menopausal women, older men, etc. High iron is a risk factor for cancer.
Turmeric extract is also supposed to be helpful. Drinking coffee or tea with meals helps reduce absorption of iron. But IP6 is the best thing we've found so far. DH has been on Jadenu off and on since my first post. That drug is really hard on the kidneys and some people go suddenly into kidney failure while on it. ![]() I'm hoping IP6 works better. It's certainly much safer than Jadenu.
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Lisa, 49. Married to the love of my life for 25 years! Moderator in Theological & Doctrinal Issues, Drawing Closer, Bible Study, & Educating Our Children Mom to 5 wonderful kids, ages 6, 12, 13, 15, 18. My Instagram Certified Corrective Exercise Specialist and Personal Trainer.. |
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The Following 3 Users Say Thank You to Soliloquy For This Useful Post: |
The Following 2 Users Say they are praying for Soliloquy: | ECingMama (02-13-2021), tempus vernum (02-14-2021) |
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#11 |
Rose Garden
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Continued prayers for your DH
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ENFp Wife who is thankful to be in love....17 years Homeschooling Mom of three....14 DD dancer and 11 DS mountain biker and 4 DD calico critter and dolly mommy ![]() ![]() ![]() ![]() |
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#12 |
Rose Garden
![]() ![]() "...to do justice,and to love kindness,and to walk humbly with your God..." Mi 6:8
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Prayers
Sent from my SM-A515U using Tapatalk
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#13 |
Rose Garden
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How is your DH?
I'm reading about crazy high ferritin with covid.
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ENFp Wife who is thankful to be in love....17 years Homeschooling Mom of three....14 DD dancer and 11 DS mountain biker and 4 DD calico critter and dolly mommy ![]() ![]() ![]() ![]() |
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#14 |
Administrator
![]() ![]() ![]() ![]() ![]() Why climb a mountain? Because it's there!
Join Date: Mar 2005
Location: Selkirk Mountains
Posts: 52,306
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It's frustrating because they only check his ferritin a few times a year. (He gets labs done every 2 weeks.) It takes a LONG time for it to come down, I think that's why. However, taking IP-6 Gold appears to be just as effective, perhaps a bit more, than the nasty med that was hard on his kidneys. Highly recommend anyone with high ferritin try it. Apparently, high ferritin is not uncommon in men over 50, even without any blood/bone marrow disease. After menopause, women can be affected by high ferritin, too. Anyone with unexplained hair loss could consider having their ferritin levels checked, also.
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Lisa, 49. Married to the love of my life for 25 years! Moderator in Theological & Doctrinal Issues, Drawing Closer, Bible Study, & Educating Our Children Mom to 5 wonderful kids, ages 6, 12, 13, 15, 18. My Instagram Certified Corrective Exercise Specialist and Personal Trainer.. |
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#15 |
Rose Garden
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Glad it is helping! Slow progress is frustrating!
Have you done anything with low iron diet? Or if he is going to have something with iron, then make sure he has something with calcium to decrease ieon absorption. I know the blood transfusions are the main issue, but that may help.
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Erin born of water and of the Spirit 4/96 married 5/02 Mama to: ![]() ![]() ![]() 2004 2007 2010 2012 July 2017 Dec 2019 |
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