reintroducing gluten

[milkmommy]

We eliminated gluten from Margarets diet about two years ago. She was five and still not potty trained and often complained of stomach pains (warm tummies( skin rashes and was pretty underweight.. A TG-IgA test was a "weak" positive.. SO it was suggested more tests would be needed but at the time we also felt it unnecessary to go though the whole biopsy etc...
Well blah blah fast forward 2 years we have decided for medical reasons we need to know.. It also means introducing gluten back in...
We gave her her first exposure on Thursday and she has had one gluten something every day since from two salteen crackers day one to a slice of sprouted 7 grain bread today.. So far she hasn't had any complaints at all..
Last night however she did wet her bed which could just be a freak thing or the fact she had a fudge stripped cookie yesterday which had milk .. She also admitted she didn't quite make it to the bathroom one time and had a "little accident" because of it. She changed and cleaned up before I could see what that exactly meant. The loose bowls were always her biggest gluten reaction. I asked if she had any stomach pains though and she said no.
Neither I or her doctors have any doubt to her gluten sensitivity but the idea of her NOT being full celiac is VERY appealing not having to overly stress over any level of cross contamination sounds like heaven.. Is the fact she isn't having huge obvious immediate gluten reactions a good sign?
Or am I celebrating too soon?

[knitlove]

I wouldn't celebrate just yet. Hug I am glad she is not having really bad reactions. Praying you get clear answers.

[AngelaVA]

I'm not sure. I know after my DD1 was off gluten for a few years she quit reacting to it. Her response was tummy stuff too, which did not come back when we reintroduced. We always hoped it would help her SPD and ADHD symptoms too but after 3 years we figured if it was going to help that it would have done so already and it didn't.


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[2sunshines]

Are you reintroducing her in order to get more testing done?

It's probably a good sign that she has reacted minimally to some exposure. I know that my dd reacts very quickly to any gluten exposure.... We also have a strong history of celiac disease in my family and those with celiac also react strongly and immediately to exposure.

However, I also agree to not celebrate too early. Because everyone's reactions are different.

If you're reintroducing in order for testing, how long does she need to be on it until you can move forward with that?

[milkmommy]

Originally Posted by 2sunshines

Are you reintroducing her in order to get more testing done?

It's probably a good sign that she has reacted minimally to some exposure. I know that my dd reacts very quickly to any gluten exposure.... We also have a strong history of celiac disease in my family and those with celiac also react strongly and immediately to exposure.

However, I also agree to not celebrate too early. Because everyone's reactions are different.

If you're reintroducing in order for testing, how long does she need to be on it until you can move forward with that?

Yes and 90 days. I know her reactions can take up to three days to really show. So far though nothing. I'm hopeful but cautious.

[mamacat]

A former neighbor f ours had cut out gluten and also an extended family member who was diagnosed with celiac and both were able to start eating it again in moderation. probiotics like acidophilus and bifidus help digest it better

[WanderingJuniper]

I would be hesitant to celebrate. I hope it is a good result. I can understand wanting a definitive answer.

I have to admut that he thought of exposing my gf daughter to gluten for 90 days makes me feel panicky. I seriously think she would end up hospitalized

.

[knitlove]

Oh I am sorry, that sounds miserable for all of you. I agree that calling the Dr and seeing if you have options would be good.


This is why my dh will neaver get an official diagnosis. He wouldn't go to the Dr but eventually agreed to try being gluten free. He has had one major accidental exposure and he ended up in the hospital, on more meds that I had post c section, because of the pain.

[sweetpeasmommy]

She may have both damaged villi that eventually leads to celiac (based on digestive symptoms) and a wheat allergy (rash indicates IgE reaction). You can ask for IgE blood work for wheat and other gluten containing grains as well as the IgA celiac blood work which may come up positive despite the short time she was on gluten. There is also genetic testing to see if you have certain genes associated with Celiac but that doesn't indicate that you actually have the disease.

C has an IgE allergy to wheat, all other gluten grains tested, and several genes associated with celiac. That was enough for us.


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[DahliaRW]

When we did food intolerance testing with my middle child, my ND said that when you reintroduce you want to do a large amount at once to see if there is a reaction. She said it's less reliable and harder to tell when you do it little by little. In our case, ds ceased to react to anything (my theory is the 8 weeks off of gluten, dairy, and eggs caused his gut to heal). On the other hand, I did the diet with him and I reacted strongly to gluten (later found out I carry one copy of the celiac gene which makes you more likely to be reactive even if it's not truly celiac).