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Natural Health & Nutrition *Public* Discuss herbs, homeopathy, home remedies, etc., and healthy eating.
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Old 06-22-2018, 12:53 PM   #1
Soliloquy
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Question Reducing ferritin levels

I know it's a long shot but has anyone reduced their ferritin levels? DH has high ferritin from blood transfusions. The recommended drug has a lot of side effects.

We are already doing some of the things in this article. Turmeric, milk thistle, foods high in sulphur, tea, raw milk.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3821171/

and I'm planning to add in organic soy protein powder.

I have to be careful with herbs as some are immune stimulants and he has a history of life-threatening auto-immune disease.
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Old 06-22-2018, 01:11 PM   #2
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Default Re: Reducing ferritin levels

no, I do not. I would recommend emailing Matthew Wood though if you think it would be helpful. I know when I was in desperate need of herbal advice he was quite helpful.
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Old 06-22-2018, 02:02 PM   #3
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Default Re: Reducing ferritin levels

Quote:
Originally Posted by sprout View Post
no, I do not. I would recommend emailing Matthew Wood though if you think it would be helpful. I know when I was in desperate need of herbal advice he was quite helpful.
He e-mailed me back too.
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Old 06-22-2018, 04:51 PM   #4
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Default Re: Reducing ferritin levels

I used to live a few hours from him.

Thank you, I will see if he has any suggestions. And I added his books to my wishlist!
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Old 06-22-2018, 05:55 PM   #5
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Default Re: Reducing ferritin levels

The only thing I know is donating blood, which I am assuming is a no go in this case.
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Old 06-22-2018, 07:44 PM   #6
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Default Re: Reducing ferritin levels

Yeah, he needs blood transfusions so the cause won't go away.

---------- Post added at 07:44 PM ---------- Previous post was at 07:42 PM ----------

Oddly enough, his dad has hemachromatosis and donates blood when he needs to. But different blood type than DH. (DH doesn't have the gene for hemachromatosis.)
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Old 06-24-2018, 09:26 AM   #7
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Default Re: Reducing ferritin levels

no advice but prayers.
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Old 06-24-2018, 01:29 PM   #8
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Default Re: Reducing ferritin levels

I've been nagging for him to go see his specialist in Portland. His hematologist is great but he needs to see the PNH specialist. We need insight on why, after years of blood transfusions, he's suddenly experiencing iron overload.
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Old 09-25-2018, 09:38 PM   #9
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Default Re: Reducing ferritin levels

He did end up going on the drug. So far, "side" effects are mild. We're praying this is a short-term need and he can stop taking it soon.
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Old 09-25-2018, 11:42 PM   #10
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Default Re: Reducing ferritin levels

:pray4

Have you made any progress on getting him to the specialist?
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Old 09-26-2018, 09:06 AM   #11
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Default Re: Reducing ferritin levels

No, only that he agrees he should go soon. Part of it is that it's a full day's drive to get there so it's a 3-day process.

---------- Post added at 09:06 AM ---------- Previous post was at 09:06 AM ----------

But he has emailed her and she responds very thoroughly to emails.
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