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05-02-2015, 07:46 PM | #16 |
Rose Garden
Join Date: Aug 2008
Posts: 30,329
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Re: Friend's dd was nearly medically kidnapped
I'm not ECing mama, but I think that given Dawn did share what had been helpful thus far such as diet, possibly the Dr wrote her off as a nut job because she's pursued natural treatments. Not in lieu of mainstream medicine, but it worked really well for years. Years that kids with Dravets are expected to lose the ability to walk, talk etc. When things became worse they started meds a couple weeks prior to her being hospitalized. However this Dr has done similar to those with a mainstream lifestyle or at least threatened to if they did so much as questioned anything she ordered. That is scary. You can see in the pics her mouth swollen from allergic reaction and in others how she normally looks. Yet that drug was given over and over increasing seizures and causing her mouth and tongue to swell every time.
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05-02-2015, 08:12 PM | #17 |
Administrator
Join Date: Mar 2005
Posts: 34,541
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Re: Friend's dd was nearly medically kidnapped
My son sees a naturopath for his autoimmune condition. I tell his pediatrician and endocrinologist what he is taking but I don't go into any details, in part because what has worked is the polar opposite to what was suggested (low fat diet that included 'healthy' whole wheat ).
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Elizabeth "Truth without love is divisive and hurtful & love without truth is anemic"--Pastor Estep Arise, cry out in the night...pour out your heart like water in the presence of the Lord; Lift up your hands to him for the lives of your children..; Lamentations 2:19 |
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05-02-2015, 09:29 PM | #18 |
Rose Trellis
Join Date: Mar 2005
Location: S. CA
Posts: 3,138
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Re: Friend's dd was nearly medically kidnapped
Wow, this is your friend? I've been following this story because I live 5 minutes from CHOC and used to work there, so I couldn't believe it! How do you know her? Such a CRAZY, SCARY story! She's a darling girl!
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LAURIE (1w9, ISFJ) Married to my most favorite person (28 years) Mama to my precious: DD1 (24), married to my dearly loved son-in-law DD2 (22) DS (19) |
05-02-2015, 09:50 PM | #19 |
Rose Garden
Join Date: Aug 2008
Posts: 30,329
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Re: Friend's dd was nearly medically kidnapped
I've known her online for years and she founded a charity for families that need help with finances. C was featured on her site last year when I was struggling with finances. She has helped so many families and is an amazing prayer warrior. I'm blessed to know her. She has always focused on helping others, even now. ️
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05-03-2015, 07:18 AM | #20 |
Rose Garden
Join Date: Apr 2008
Posts: 5,542
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Re: Friend's dd was nearly medically kidnapped
This sounds like one of those situations that is SCREAMING for a multi-million dollar medical malpractice lawsuit. Definitely goes against the "Do No Harm" oath.
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Darcy married to my Photographic Genius (1/00) Mom to: Prima, Secunda, Tertia, and Quarta Youth and Beauty are fleeting, but the ability to bake a great chocolate cake lasts forever! |
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05-03-2015, 02:42 PM | #21 |
Rose Garden
Join Date: Mar 2005
Posts: 17,568
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Re: Friend's dd was nearly medically kidnapped
I've been following as well. My mom works at the hospital that CHOC shares a lab with (which you will know without me giving the name). I asked my mom if she had ever met this doctor or worked with her and she was thankful she hadn't. But, she is now following the story closely as well.
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Marcella Wife, Mom, Counselor Married and standing firmly with my love since 1994, mama to farmer girl (21) princess lionheart (16), and dandelion queen (11) ~infp~ Our God is Healer, Awesome in Power!
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05-03-2015, 02:51 PM | #22 |
Rose Garden
Join Date: Aug 2008
Posts: 30,329
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Re: Friend's dd was nearly medically kidnapped
She got discharged today!
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05-03-2015, 03:01 PM | #23 |
Administrator
"air-mannah Leen-dah" it means Sister Linda in Spanish
Join Date: Mar 2005
Posts: 51,808
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Re: Friend's dd was nearly medically kidnapped
Praise the Lord!
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05-03-2015, 06:03 PM | #24 |
Rose Garden
Join Date: Aug 2008
Posts: 30,329
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Re: Friend's dd was nearly medically kidnapped
They are not returning to their home until the CPS case in Orange County is closed. The one in San Fransisco was closed fairly quickly. Please pray the case gets closed and they are able to return home.
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05-03-2015, 07:08 PM | #25 |
Rose Garden
Join Date: Mar 2005
Posts: 17,568
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Re: Friend's dd was nearly medically kidnapped
Praying. Orange County is so difficult. We have heard that our case would not have been given any merit outside of this county. Something needs to change.
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Marcella Wife, Mom, Counselor Married and standing firmly with my love since 1994, mama to farmer girl (21) princess lionheart (16), and dandelion queen (11) ~infp~ Our God is Healer, Awesome in Power!
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05-03-2015, 07:31 PM | #26 |
Rose Garden
Join Date: Feb 2007
Posts: 9,120
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Re: Friend's dd was nearly medically kidnapped
Thank you for the update. I am relieved to hear how wise & proactive they've been legally.
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05-05-2015, 12:26 PM | #27 |
Rose Garden
Join Date: Aug 2008
Posts: 30,329
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Re: Friend's dd was nearly medically kidnapped
Asking for more prayers for Kennedy. She is back at UCSF with an allergic reaction.
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05-05-2015, 12:32 PM | #28 |
Rose Garden
Join Date: Jul 2005
Location: The rainy side of Washington.
Posts: 18,232
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Re: Friend's dd was nearly medically kidnapped
Praying
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Amber ISFJ Wife to my wonderful DH And keeper of the boys Big M (6/03) Forever ours Dec 2012 C (6/04), Little M (10/05) Forever ours Dec 2012 K (5/06) Missing our foster daughter Miss A |
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05-16-2015, 09:11 PM | #29 |
Climbing Rose
Join Date: Mar 2010
Location: Texas
Posts: 1,381
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Re: Friend's dd was nearly medically kidnapped
How is she doing now?
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Married to C for 19+ years Mom of 5 DS1 17 DD (in Heaven) DS2 11 DS3 7 DS3 2 |
05-16-2015, 09:15 PM | #30 |
Administrator
"air-mannah Leen-dah" it means Sister Linda in Spanish
Join Date: Mar 2005
Posts: 51,808
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Re: Friend's dd was nearly medically kidnapped
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