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Old 09-11-2017, 11:02 PM   #14
Maedchen
Rose Trellis
 
 
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Default Re: A question for those who have kids with mild food sensitivities

Ok, please note that this is a subject that I feel extremely passionate about and I mean no disparaging remarks to any of you moms.

With that said, I would not buy 1 single gluten item and bring it through the door. She will not starve herself. She will eat when she is hungry.

Chicken Skin as it is called is Dermatitis herpetiformis which is really celiac disease.

(I have a sister that is non compliant and cheats right and left because it is 'too hard'........rolling my eyes. I spent $1,000 to go back home and provide her with food, cook to show her and fill her freezer and she would not even go to the kitchen to try to learn how to make foods that are good and tasty and YES gluten free treats can be just as good as the gluten)

I was a baker pre gluten free days and then I became our local celiac group's baker before it was popular and my health took a downward turn.

IF I had known what Celiac disease was prior to our youngest daughter's 17th birthday, we would have been gf from 1986 and hopefully preserved her fertility. She is barren because of non controlled celiac disease. My oldest sister, was a registered nurse, she would not go gluten free and we buried her 6 months after she found out she had colon cancer.


I have no problem sitting down with a daughter your daughters age and telling her just what she is risking. Our youngest doesn't blame us for not treating her celiac disease. I begged doctors from post to post to check into her gastro issues, but I was the mom that was too involved and worried too much.........6 bms a day were 'normal for her'.

Celiac disease is not like playing with sugar and giving a little more insulin. You can't stick gf bread in a gluten bag....you just contaminated it. A little gluten DOES a lot of damage down the line.

I have a friend in our support group that has a stomach full of tumors and scar tissues..............it is just a matter of time before they become cancer. They have removed all they can for now. (She was an adult when she discovered she was celiac.)


To me, just as I would not let a 12 yr old decide to play with loading a gun, I would not allow her to have gluten in our home. I would talk until I had no more breath about how she is playing with her life.


I am sorry if this passionate post offended any of you, but I am so beyond angry at my sisters........the one that died and the one that doesn't want to cook for putting me through the emotional roller coaster of watching them eat themselves to death one gluten bite at a time.
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