[tempus vernum]

Originally Posted by sweetpeasmommy

It is really very low. Is she doing better this evening?


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I’m at work so i have no clue. She’s been low for months. We have had more than one doctors visit. She’s had syncopal episodes and many other episodes and symptoms (racing heart, shortness of breath, weight loss, dizziness digestive issues sleep disturbances brain fog,,, theres more I Can’t think of) . She stands up and sways and sways and that’s when it appears she had orthostatic bp dipping to 70/40. She’s miserable most of the time, but can work up the gumption to do gymnastics and begs to not quit. So far they think it’s a good idea (and especially if she has pots I guess)

I’ve posted abt it elsewhere. I’m Just really confused because they said her holter was “unremarkable” but are suddenly calling constantly (even after business hours) to check if their stat referral was expedited and now freaking out cuz pots couldn’t see her till May. I’m confused cuz they’ve sent her home from the ER and 3 follow ups. Now all of a sudden everything a rush after her unremarkable holter monitor.

It seems like either
1 an overreaction
2 they should’ve admitted her

They finally got an Appt w a pots specialist in 2 weeks the first “stat” referral was set on May 18.

I’m just baffled and wondering if we r living in denial. Letting her do whatever, live normally etc. Is she near critically ill or is she not? I’m just confused ... and was trying to understand . We were told just to get this moving but as time passes it seems they are increasing their urgency

Her bp normal is dropping too... was 110/70 now 90/60. They r also testing for addisons. That doctor also doesn’t want her quitting gymnastics


I’ve said more than I intended in let’s talk . I was in a huge hurry after yet another call from a provider — I was truly just trying to get a grasp for if 70/40 was “that low” when it’s 70/40 she rocks and sways and grabs stuff to stay upright or the provider has to hold her up when doing orthostatics

I now recognize the referral specialists back line from my dd’s pcp and know her by name the last call today she said “hey it’s x...” and I was like “yeah I recognized your number “